How to use a Desferal pump

 

What if you’re young and because of your Pyruvate Kinase Deficiency your Ferritin is too  high. In some cases, when other medicines don’t work or are not efficient, the doctors advice to use Desferal. But that’s not an easy thing to do and especially when not you’re a young boy. Using Desferal involves needles and a pump that has to stay several hours and sometimes multiple times a week.

A Very Brave young man  with Pyruvate Kinase Deficiency made a video together with his mother in where he explains how it works. Hos goal is to teach people all about it and  he has done a great job explaining it, without making it scary.

So we are Very proud to share this video and we hope that it will help other people that have to use Desferal.

Advertisements

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s