What if you’re young and because of your Pyruvate Kinase Deficiency your Ferritin is too high. In some cases, when other medicines don’t work or are not efficient, the doctors advice to use Desferal. But that’s not an easy thing to do and especially when not you’re a young boy. Using Desferal involves needles and a pump that has to stay several hours and sometimes multiple times a week.
A Very Brave young man with Pyruvate Kinase Deficiency made a video together with his mother in where he explains how it works. Hos goal is to teach people all about it and he has done a great job explaining it, without making it scary.
So we are Very proud to share this video and we hope that it will help other people that have to use Desferal.