Pyruvate Kinase Deficiency

Understanding and living with PKD

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Agios pyruvate-kinase-deficiency
Bloedziekten/PKD
European Network for Rare Anaemias
European Network for Rare and Congenital anaemias
Facebook support group (English)
Facebook support group (French)
Little Bernat, a little boy with Pyruvate Kinase Deficiency
National Organisation for Rare Disorders (USA)
Natural History Study
Nederlands Patiëntenverhaal – van Creveldkliniek Utrecht
Orphanet
Presentations of the Enerca 6th european symposium in Amsterdam
Rare Disease Day
The variable manifestations of disease in pyruvate kinase deficiency and their management
VKS pyruvaat kinase deficientie
Youtube – Enerca presentations of the 6th European Symposium

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