Pyruvate Kinase Deficiency

Understanding and living with PKD

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Links

Agios pyruvate-kinase-deficiency
Bloedziekten/PKD
European Network for Rare Anaemias
European Network for Rare and Congenital anaemias
Facebook support group (English)
Facebook support group (French)
Little Bernat, a little boy with Pyruvate Kinase Deficiency
National Organisation for Rare Disorders (USA)
Natural History Study
Nederlands Patiëntenverhaal – van Creveldkliniek Utrecht
Orphanet
Presentations of the Enerca 6th european symposium in Amsterdam
Rare Disease Day
VKS pyruvaat kinase deficientie
Youtube – Enerca presentations of the 6th European Symposium

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