Agios is developing a questionnaire that will help them to understand the impact of PK deficiency on both patients and caregivers. To learn this information, a trained interviewer will be conducting face to face interviews with adults, adolescents, and young children with PK deficiency, and caregivers of children with PK deficiency. The interviews take about 1 hour to complete. If you would like more information about this work, please click here to read the flyer.
Interviews are now being conducted in the US for patients and caregivers living in the US. Plans are underway to include patients and caregivers living in Canada and the EU. More information will be provided once this project is approved in these locations.