The Italian Association STEM Onlus organizes a “Patient’s day” dedicated to pyruvate kinase deficiency (PKD) in Milan on the 16th may.
The purpose of the meeting is to spread knowledge and illustrate the new scientific and therapeutic opportunities available, but also to initiate “informal” dialogue between doctors and patients and creating a spontaneous network of support for patients with this rare disease.
For more information about this day visit this website (in Italian) : http://www.astem.it/11-news/41-16-maggio-2015-pkd-patient-s-day
About STEM Onlus
Since 2008 the Association STEM Onlus has already organized several meetings between doctors, patients and their families, called “Patients’ day” dedicated to rare diseases, such as paroxysmal nocturnal hemoglobinuria, hemolytic anemias congenital defect of the diaphragm and enzymes of the red blood cell and autoimmune forms. The initiatives have seen an active participation and felt, with exchange of knowledge and experiences regarding the difficulties of living with a rare disease, as well as the birth of the Italian Association of patients with paroxysmal nocturnal hemoglobinuria (AIEPN).